Saturday, September 20, 2008

On A Serious Note...

Hi, friends. I usually try to keep this blog light and fluffy, but today life just won't permit it. Those of you who have had the pleasure of meeting my parents, Rex and Eunice, know what wonderful people they are. My mom has had memory issues for years now, and she has always made little jokes about her diminishing "gray matter." We always chuckled about it. Didn't think much of it. Memory loss is just a natural part of aging, right? This last year she has gotten much worse, and has gotten worse quickly. We don't have an official diagnosis from the doctor, but all signs point to Alzheimer's. Starting this past week, she has been terrified to be with Rex. She locks herself in their bedroom, locks him out of the house when he goes to get the mail, and recently locked herself into a Taco Time bathroom, refusing to come out. You can imagine the scene. Whenever I leave the house, she begs to come with me, to not leave her alone with "that man." That man is my amazing dad, who since her knee replacement surgery last summer, has taken on the role of June Cleaver around these parts. He does the cooking, the laundry, cleans the house, makes sure she is taking her meds, lifts her up from chairs, and on and on. It is heartbreaking to see her so afraid of the man who loves her more than any husband could possibly love a wife, who would never hurt her, and who has sacrificed his own health to care for hers.

Today my sister Lee Ann and I drove around town to find a care facility for my mom. Now I love to shop, but this is one shopping trip that I prayed I would never have to make. We found a really nice home specifically for patients with Alzheimer's less than a mile from our house, but of course it doesn't accept Medicare and costs around $3500 a month. Is the only other option to sell their house and put her in a nursing home? Surely there is a way that he can continue to live at home and pay for her care at the same time. We have started to look into the reverse mortgage option, but it seems like such a scam to me. I know we should have planned for this better. We should have been researching all of this a long time ago. But procrastination is the Johansen Family way, and here we are.

Could you please pray for my mom? Pray that doors will be opened for us, that we can be led to people who will have answers and solutions that will work for our family? I would be so grateful. And if any of you have been faced with similar situations, what did you do? I want to find the best possible care for this sweet, tender-hearted, unselfish, perfect mother who taught me how to ride a bike, write my name, bake a pie, tie a square knot, pray to my Heavenly Father, and serve others.

11 comments:

turleybenson said...

Oh Randi. I'm so so sorry. I'll definitely be praying for the Johansens. My heart is aching for you all...

Becky W. said...

Yes, yes, we will pray for your mom, and for your family. Hang in there. It sounds like a very trying time. I'm glad your mom has you and your sister to worry about her. I hope a positive option comes up soon.

Bekah said...

Randi, you are all in our prayers. I know from personal experience how heartbreaking it can be to live with a loved one with Alzheimer's. Give Rex and Eunice a hug from me, and know that we love you!

Rebecca McAllister said...

Rad, I love you. You are all already in my constant thoughts and prayers. I know that a door will be opened. I know that God loves your family and he will not leave you alone to face this and figure it out. If he helped me find my Lock-and-Roll curlers in the 10th grade so I could feel cute at one of those lame church dances we could never miss, he will help your beutiful and righteous family find a place for Eunie where she will be safe and cared for and loved. I know it.
I love you.

Kelly said...

Oh, Randi, I'm so sorry you're dealing with this. Your family will definitely be in my prayers.

This is an article I co-wrote on reverse mortgages while working at an elder law firm in DC: http://www.edlc.com/CM/ProfessionalResources/Reverse-Mortgages.asp. I know some of the firm's clients used it as an option, so while I'm sure like any mortgage it can be seedy, it isn't always.

You might also try calling your local AARP and seeing if they have resources and advice, or can point you in the direction of someone you can talk to about different options.

{Hug}

Unknown said...

I hate that she's gotten worse even since we were talking about this while in Boston. Stupid Medicare!! You pay in for it your whole life then when you really need it...well, that's another post all of itself. I'm going to the temple tomorrow night. Your families names will be laying on the alter in Birmingham. Lots of faithful folks down here that will be praying for your family as well :) Love you.

k.e.l.l.i.e. said...

of course Randi, we will pray for you! I am so sorry that you have to go through this. How horrible that Medicare won't cover something that is obviously needed. We have never gone through the 'shopping' part but my grandmother was that bad. She was angry all the time, mean to us, and and it was tough to watch her go through that. And continue to love and care for someone who doesnt want you around. It was especially tough for my mom having to care for her own mother like that. I am so sorry Randi, definitely let me know if there is anything else I can do, but I will be praying for you and your family.

Tamlynn said...

Randi!

I was so happy to see your blog, and now I am so sad. I will definitely keep your family in my prayers. I have met Rex and Eunice and couldn't help but love them!

My gpa had alzheimers. He spent the last few years of his life in a lockdown facility. I am sorry I don't have better info. It was very sad. (((hugs)))

Kam said...

Oh Randilish, I'm so sorry. I can only imagine what you and your family must be going through. Something will have to work out, I know it will. I wish there was some way we could help other than just encouraging words, thoughts, and prayers.

k.e.l.l.i.e. said...

P.S. i love that pic of your mom. Are you at a mariners game?

the House of Payne said...

Fasted for familia Johansen on Sunday. Praying for you, Red.